Showing posts with label neonatal. Show all posts
Showing posts with label neonatal. Show all posts

Tuesday, 13 December 2016

The months after is when you need support the most





I know it has been a while since my last post, but I don’t want to just write every week, this is a real life journey and I only write when I feel it is the right time to share  my recent experiences I’ve had while living life after great loss.

Everyday life since losing Isabella has changed, small things you don’t notice during your daily routines all of a sudden becomes a big deal, at one point I felt every time I left the house all I would see is babies and baby stuff everywhere; my anxiety grew so much I just wanted to stay at home all the time, my house became my sanctuary for me, my haven, my own space to lock myself away from society, I would always say to myself, ‘how and when will I start to cope’.

(In recent months i’ve found grief is truly like the ocean, it comes in waves and sometimes can consume you when you least expect it, don’t fight your emotions, roll with them like those waves, the more you fight and hold back the worse you will feel to which point you may sink into the deep dark obis of depression.)



I wake up every day to my routines of life itself, then all of a sudden it just hits me that I lost my daughter and will never be able to hold her in my arms again, it really does consume me at different times of the day but I am still learning to remind myself of the fact we had the chance to look into her beautiful eyes, while she stared right back at us knowing that she was loved unconditionally, these thoughts are what keeps me looking forward.

The support we had after Isabella was born and when she grew her wings was just amazing, our close friends and family helped organise her burial and really showed so much love and light during a time of such darkness. The following weeks we had people calling to our house on a daily basis which kept us going but looking back now I can see that it hadn’t sunk in still, we were numb, in shock, I knew what had happened but I hadn’t processed the fact that we have lost our baby girl. I do think that if it wasn’t for Keelan I could have sunk much lower, but this is a point you feel you’re at a cross roads and must try your best to continue on and learn to live your life after such a loss. 
I remember so clearly waking up the following morning after our final goodbye, the sun was shining so bright through our curtains, we just laid there in silence, in a state of shock not knowing what to do with ourselves, the door bell rang constantly by people calling to us, and at the time I just wanted to be left alone, but I got up as I did not want to look weak and then dived into washing all our clothes from Dublin, I washed the same clothes 2 or 3 times just to keep myself busy, as crazy as it sounds thinking about it now I just wanted to feel human again, I was trying to imagine that I would be doing this if she was still there and asleep in her mosses basket, I just wanted to feel like a mother to a new born baby while trying to block out the pain in case I fell apart even though inside I was broken, empty and felt useless.

I have come to the realization that support is needed more than ever months after losing a loved one, most people would presume as months have passed you start to learn how to cope, as they say ‘time is a great healer’ which it is very true however, emotions would start to sink in during the later stages of grief, when your days quieter down and people stop calling as much, this is when you have more time to think to yourself about what has happened, this is the crucial time you will need support.

I am so thankful for my group of close friends who have been travelling this journey alongside me, who knows when I am having a bad day or week, who would call for a cup of tea to talk about everything and listen to me, or just sit there in silence with me just so I feel their company there with me, letting me know I am not alone. I feel it is very important to share this if you know someone who is currently grieving that support is very much needed when months have passed, whether it’s a call, a text or just passing through for tea anything just to show that someone is still thinking of you would mean the absolute world, I know this because it means everything to me and has helped me get through the dark days.

If you are the one going through the pain of loss you must keep talking and if you need someone to listen to you, you must pick up your phone or call to your friends or families house because talking is key to a healthy mind, remember it’s not getting over something like this it is learning to cope with it, this is what I have learned so far and still have so much to come. 


Thank you to my friends and family xoxox

Tuesday, 18 October 2016

Letter to Minister for Health Simon Harris


Below is the letter I have sent to the Minister on 5/10/16, I have yet to gain a response however I have amazing people supporting me who are doing everything in their power to push for this crucial meeting that without a doubt must take place. 

I will continue to keep everyone updated on our progress and will continue to drive our campaign this as much as possible. 

Mother to an angel xox


Friday, 16 September 2016

Now I Lay Me Down To Sleep - Our photographer for Isabella


NILMDTS

Now I Lay Me Down to Sleep
Capturing Love, Not Loss

Once we were told on that fateful day that there was nothing they can do to fix our Isabella’s heart we did not know what to do next, in fact we were frantic as we knew time was stolen, every minute we had her here we wanted to try and do everything we can for our family and close friends to meet with her and capture every little expression she gave us onto camera before she grew her angel wings.

As I have constantly said throughout our campaign, the Crumlin staff has been and still are absolutely amazing and truly gave us a little light at such a dark hour. They explained that they can organize a christening for her and also a private photographer, I must admit I was taken back a little of the thought of having someone come in and take photos of our dying daughter or even if she had already passed away, as I tried to think it through all that was going around in my head is that her big brother needs pictures of her, we need pictures of her, this will be a once in a lifetime opportunity, there would be no going back if we changed our minds and if we did not like them then we don’t have to look at them, but my goodness I am so pleased we went ahead and had them done.




Our photographer Michelle came in and she was so respectful and instantly put us at ease, she took photos of her little teddies, her hands and feet and then started to take photos of our little princess with us by her side, Isabella was amazing and gave us this extra time to get these photos done of her within her final hours. There was a sense of calm while we were having our photos taken and it was as if time was frozen, and now we can look back at these precious moments and have a sense that she is with as always.







Her big brother keelan said ‘I miss my sister Isabella very much, she is still part of our family because we have these photos that the lady took of her’.






NILMDTS gave us a chance to capture our daughter’s expressions and most beautiful eyes, we truly feel blessed to have her pictures to look at, and we feel so grateful to know that our son Keelan will have these to remember her by.

Photos by NILMDTS






NILMDTS Mission is to introduce Remembrance Photography to parents suffering the Loss of a baby with the Gift of Professional Portraiture.

View their website here; www.nowilaymedowntosleep.org

NILMDTS facebook page click here

If you would like to volunteer to become a NILMDTS photographer or if you would be interested in learning more about various volunteer roles nationwide here in Ireland or worldwide click here to find out how to be part of this amazing organization. 



 Or if you know someone who needs the service of NILMDTS, please contact their central number 
083 377 4777 or nilmdtsireland@gmail.com


 A special thank you to our photographer Michelle and all at NILMDTS, you gave us a little light at such a dark time, you let us create memories and keep them for a lifetime and to that we thank you.