Friday 5 January 2018
Hidden emotions ~My journey through grief
Labels:
antenatal anomaly screening,
bereavement,
Isabella's CHD Awareness & Pregnancy Screening Campaign,
life after loosing my baby,
pregnancy or infant loss,
The journey of a grieving mother
I have two children one of which gained her wings and became an angel at 6 days old. My mission is to create awareness for congenital heart disease (CHD) and promoting better screening for all ladies who are pregnant.
We want to help any other parent who's child has CHD or who is walking the same path as ourselves of loosing a child.
Our angel Isabella was sent here for a reason and I believe her story will do just that.
Sunday 31 December 2017
New year, New chapter 2018
Another year nearly down and ready for the next chapter in our lives, ready for the new year to make more amazing memories with my close friends and family and ready to learn more life lessons. Never a day goes by without remembering those precious moments with my amazing daughter who is always in my heart, still feels like it was only yesterday she was in my arms, and my dear grandad who I miss dearly. I've learned soo much this past year and embrace each day I have with my loved ones, feel incredibly lucky to have Kevin always by my side and Keelan who always wakes up with a smile on his face, I feel blessed to have my mum and nan and all our family and friends who support us in each and every way. Blessing all our angels in heaven and blessing you all for health, friendship, and love for 2018 and for ever more. Xxx
Labels:
chd awareness,
life after loosing my baby,
mother to an angel,
pregnancy or infant loss,
The journey of a grieving mother
I have two children one of which gained her wings and became an angel at 6 days old. My mission is to create awareness for congenital heart disease (CHD) and promoting better screening for all ladies who are pregnant.
We want to help any other parent who's child has CHD or who is walking the same path as ourselves of loosing a child.
Our angel Isabella was sent here for a reason and I believe her story will do just that.
Monday 22 May 2017
Happy 1st Birthday to our Angel Isabella
It's hard to believe it's one year today, all I keep thinking about is this time last year she was with us, I keep getting flash backs of the joy she brought us when she was born, and then the heartbreak and pain in which we could not save her.
I somehow found comfort in the fact that she was with us this time last year, and I am petrified of the thought now that i can no longer say this as crazy as it may sound.
We should be getting ready for her first birthday party, but instead I am trying to find something that is weather proof to place on her grave, something I never thought I would be doing.
In my head I want everything perfect and why not, I am still a mother who wants the best for her children. The process in which all parents have to go through, the first of anything is the hardest but keeping in mind that she is watching over us all and growing on the other side some how brings me to a smile.
Would you believe I saw a red butterfly today, it made me think of her, but this time it was not white as I would always see, it was a bright red, I like to think that's a sign from her telling me she is growing, and that she is around us always.
Happy 1st birthday our darling Isabella, from mum, dad and your big brother Keelan xx
Labels:
Hypoplastic left heart syndrome,
Isabella's CHD Awareness & Pregnancy Screening Campaign,
NILMDTS,
pregnancy or infant loss,
The journey of a grieving mother
I have two children one of which gained her wings and became an angel at 6 days old. My mission is to create awareness for congenital heart disease (CHD) and promoting better screening for all ladies who are pregnant.
We want to help any other parent who's child has CHD or who is walking the same path as ourselves of loosing a child.
Our angel Isabella was sent here for a reason and I believe her story will do just that.
Monday 15 May 2017
Universal access to Foetal Anomaly screening to be made for Women Nationwide
Myself and
Kevin are delighted to announce the passing of a Dail Motion by Sinn Fein’s
Health Spokesperson T.D Louise O’Reilly who highlighted the current issues
within Irelands Maternity Services. The motion included universal access to
foetal anomaly screening across all Maternity Hospitals Nationwide, the full
implementation of the National Maternity Strategy and a commitment to work with
nursing and medical unions in the recruitment and retention of medical staff so
that all maternity hospitals meet the ‘Birth rate plus standard’ for midwifery
staffing, as well as international standards for consultant obstetricians and
gynecologists.
Louise O’Reilly
has called on the Minister for Health to swiftly implement the commitments made
in the Dail with regards to the National Maternity Hospitals, she said that it
is now up to the Government to stand by their commitment and that she will be
following up with the Minister to ensure implementation of these incentives.
This is a major victory for Women’s Health and the Minister must now accept the
collective will of the Dail and act on the motion.
Words will
never be able to describe our emotions, we are still travelling through our
journey of loss, but we will always truly believe our angel was sent to us for
a reason and this news just proved that.
Since the
day I received a message from Cllr Damien Quigg who showed so much compassion
for our campaign and pure dedication we believed as a small group of people we
can make change. Cllr Damien Quigg connected us with T.D Louise O’Reilly during
our Dublin visit for my Ireland AM interview, and I will always remember
sitting in the room with my good friend Shauna, a fellow heart mum while we
both told her our stories, I knew instantly from her reaction that she would
not rest until our voices were heard and that is exactly what she did.
All those
parents who spoke out about their heartbreaking experiences, the media who took
it in their stride to share our journeys, to Cllr Damien Quigg who supported
our campaign and set us in a direction were we would not have been able to go
without him, and to T.D Louise O’Reilly who made not only our voices heard but
the voices of all our angels in a place where change can be made, once implemented
babies lives will be saved as a diagnosis will be made prior to birth, and
parents to be, will be getting the service they deserve.
Its been
such an incredibly hard time for us this last year and our Isabella’s birthday
and anniversary is only around the corner but I truly hope with all my heart that
she knows she helped make this change.
In memory of our Isabella, our very own angel.
Labels:
20 week anomaly scan,
chdawareness,
child health,
Cllr. Damian Quigg,
foetal anomaly screening Ireland,
maternity services,
Minister of Health Simon Harris,
national maternity strategy,
TD Louise O'Reily
I have two children one of which gained her wings and became an angel at 6 days old. My mission is to create awareness for congenital heart disease (CHD) and promoting better screening for all ladies who are pregnant.
We want to help any other parent who's child has CHD or who is walking the same path as ourselves of loosing a child.
Our angel Isabella was sent here for a reason and I believe her story will do just that.
Monday 20 February 2017
Meeting with National Programme Director for Women and Infants’ Health
Well since we started our Isabella’s campaign to raise awareness of CHD
and promote that all women in Ireland should be entitled to the 20 week
screening, we’ve received continual support from many families who have
travelled a similar path as myself and Kevin, I feel through our own pain like
many others are going through, it helps to speak to those who know and feel the
same heartbreak.
Reading peoples stories, some with happy endings and others with sad, it
really has given me even more drive to push this as much as we can. I still
remember writing all our memories of Isabella to try and keep her alive in us,
and even though she was only here on earth for a short time she incredibly left
her mark.
With the help of the media making our voices heard the HSE are now listening.
Since we gained a response from the Minister for Health Simon Harris I received
an email from Kilian McGrane, who is the newly appointed ‘National Programme
Director for Women and Infants’ Health and will be rolling out the programme to
introduce the 20 week anomaly scan to all expectant mothers nationwide . Minister
Simon Harris forwarded my email to Mr McGrane and asked for him to meet with me
regarding our campaign for anomaly scanning.
In recent weeks Mr McGrane has contacted me and welcomed an opportunity
to meet with me to discuss the important issues raised in my email to the
Minister.
I will be meeting with Mr McGrane at Tralee University Hospital on
Wednesday 22nd February, he will also be joined with the recently appointed
clinician, Dr Peter McKenna, who is the Clinical Lead for the Programme.
In the meeting I will be giving an insight from a parents perspective
from our own personal journey and what we feel needs to be addressed, from the
much needed scan to also highlighting
the lack of after care service to families whose baby passes away, specifically
for parents and the siblings.
If you have had a similar experience or know someone
who has and would like to raise any questions please feel free to contact me prior
to my meeting and I will ensure your voice is heard.
I will keep you all updated, and I know Isabella
will be with me.
Email: jazminesands@gmail.com
Mother to an angel
Labels:
20 week anomaly screening. expectant mothers,
bereavement,
chd awareness,
HSE,
Hypoplastic left heart syndrome,
Ireland,
The journey of a grieving mother
I have two children one of which gained her wings and became an angel at 6 days old. My mission is to create awareness for congenital heart disease (CHD) and promoting better screening for all ladies who are pregnant.
We want to help any other parent who's child has CHD or who is walking the same path as ourselves of loosing a child.
Our angel Isabella was sent here for a reason and I believe her story will do just that.
Thursday 19 January 2017
Equal access to standardized ultrasound services to be implemented throughout all maternity units
I am
delighted to announce that since our campaign started for the right of all
expectant mothers to be given routine detailed screening, we are finally seeing
progress made. Minister for Health Simon Harris emailed me today confirming
that the HSE National Service Plan 2016 committed to the planning and development
of equitable access to antenatal anomaly screening throughout all maternity
units in the context of emerging maternity networks.
In addition,
the National Maternity Strategy is now clear that all women must and will have
equal access to standardized ultrasound services. This strategy will be implemented
on a phased basis over the coming years which will be led by the National Women
& Infants Health Programme.
The newly
appointed Director will be meeting with me in due course to discuss the
strategy going forward, in this meeting I will be also highlighting the after
care service for families who suffer loss of their baby, which through our own experience
is seriously neglected.
Words cannot
describe how we are feeling now, from such a dark and sad time in our lives our
beautiful daughter shed some light from heaven, I knew in my heart she was sent
here for a reason, I am so proud of our angel. Our campaign was never darkened
around negativity, through our experience we saw a fault in the health care of
maternity services and in our daughters memory we simply did not want anyone
else to go through what we and many other families have gone through. I have
always said that we wanted to work alongside the HSE and not against it and now
they have started to implement a plan for all expectant mothers to receive
routine anomaly screening nationwide so if anything has been detected proper
procedures can be put in place before birth giving all babies a fighting
chance.
I am blown
away from all the support we have received since Isabella was born and when she
grew her wings, I am so proud to be her mum, she is around us always and
throughout our campaign this miracle has just proved it.
I will keep
you all updated on further progress as this is only the beginning.
Mother to an angel
xoxox
Labels:
antenatal anomaly screening,
chdawareness,
Crumlin,
HSE,
Ireland,
Isabella's CHD Awareness & Pregnancy Screening Campaign,
life after loosing my baby,
Minister for Health Simon Harris,
NILMDTS
I have two children one of which gained her wings and became an angel at 6 days old. My mission is to create awareness for congenital heart disease (CHD) and promoting better screening for all ladies who are pregnant.
We want to help any other parent who's child has CHD or who is walking the same path as ourselves of loosing a child.
Our angel Isabella was sent here for a reason and I believe her story will do just that.
Tuesday 13 December 2016
The months after is when you need support the most
I know it has been a while since my
last post, but I don’t want to just write every week, this is a real life
journey and I only write when I feel it is the right time to share my recent experiences I’ve had while living
life after great loss.
Everyday life since losing Isabella
has changed, small things you don’t notice during your daily routines all of a
sudden becomes a big deal, at one point I felt every time I left the house all
I would see is babies and baby stuff everywhere; my anxiety grew so much I just
wanted to stay at home all the time, my house became my sanctuary for me, my
haven, my own space to lock myself away from society, I would always say to
myself, ‘how and when will I start to cope’.
(In recent months i’ve found grief is truly like the ocean, it
comes in waves and sometimes can consume you when you least expect it, don’t fight
your emotions, roll with them like those waves, the more you fight and hold
back the worse you will feel to which point you may sink into the deep dark
obis of depression.)
I wake up every
day to my routines of life itself, then all of a sudden it just hits me that I
lost my daughter and will never be able to hold her in my arms again, it really
does consume me at different times of the day but I am still learning to remind
myself of the fact we had the chance to look into her beautiful eyes, while she
stared right back at us knowing that she was loved unconditionally, these
thoughts are what keeps me looking forward.
The support we had after Isabella was born and when she grew her wings was just amazing, our close friends and family helped organise her burial and really showed so much love and light during a time of such darkness. The following weeks we had people calling to our house on a daily basis which kept us going but looking back now I can see that it hadn’t sunk in still, we were numb, in shock, I knew what had happened but I hadn’t processed the fact that we have lost our baby girl. I do think that if it wasn’t for Keelan I could have sunk much lower, but this is a point you feel you’re at a cross roads and must try your best to continue on and learn to live your life after such a loss. I remember so clearly waking up the following morning after our final goodbye, the sun was shining so bright through our curtains, we just laid there in silence, in a state of shock not knowing what to do with ourselves, the door bell rang constantly by people calling to us, and at the time I just wanted to be left alone, but I got up as I did not want to look weak and then dived into washing all our clothes from Dublin, I washed the same clothes 2 or 3 times just to keep myself busy, as crazy as it sounds thinking about it now I just wanted to feel human again, I was trying to imagine that I would be doing this if she was still there and asleep in her mosses basket, I just wanted to feel like a mother to a new born baby while trying to block out the pain in case I fell apart even though inside I was broken, empty and felt useless.
I have come to the realization that
support is needed more than ever months after losing a loved one, most people
would presume as months have passed you start to learn how to cope, as they say ‘time
is a great healer’ which it is very true however, emotions would start to
sink in during the later stages of grief, when your days quieter down and people
stop calling as much, this is when you have more time to think to yourself
about what has happened, this is the crucial time you will need support.
I am so thankful for my group of
close friends who have been travelling this journey alongside me, who knows
when I am having a bad day or week, who would call for a cup of tea to talk
about everything and listen to me, or just sit there in silence with me just so
I feel their company there with me, letting me know I am not alone. I feel it is very important to share this if
you know someone who is currently grieving that support is very much needed when
months have passed, whether it’s a call, a text or just passing through for tea
anything just to show that someone is still thinking of you would mean the absolute
world, I know this because it means everything to me and has helped me get
through the dark days.
If you are the one going through the
pain of loss you must keep talking and if you need someone to listen to you,
you must pick up your phone or call to your friends or families house because
talking is key to a healthy mind, remember it’s not getting over something like
this it is learning to cope with it, this is what I have learned so far and still have so much to come.
Thank you to my friends and family
xoxox
Labels:
angel mum,
bereavement,
chdawareness,
congenital heart,
Crumlin,
HPLHS,
life after loosing my baby,
months after loosing a baby,
neonatal,
neonataldeath,
The journey of a grieving mother
I have two children one of which gained her wings and became an angel at 6 days old. My mission is to create awareness for congenital heart disease (CHD) and promoting better screening for all ladies who are pregnant.
We want to help any other parent who's child has CHD or who is walking the same path as ourselves of loosing a child.
Our angel Isabella was sent here for a reason and I believe her story will do just that.
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