Monday, 20 February 2017
Well since we started our Isabella’s campaign to raise awareness of CHD and promote that all women in Ireland should be entitled to the 20 week screening, we’ve received continual support from many families who have travelled a similar path as myself and Kevin, I feel through our own pain like many others are going through, it helps to speak to those who know and feel the same heartbreak.
Reading peoples stories, some with happy endings and others with sad, it really has given me even more drive to push this as much as we can. I still remember writing all our memories of Isabella to try and keep her alive in us, and even though she was only here on earth for a short time she incredibly left her mark.
With the help of the media making our voices heard the HSE are now listening.
Since we gained a response from the Minister for Health Simon Harris I received an email from Kilian McGrane, who is the newly appointed ‘National Programme Director for Women and Infants’ Health and will be rolling out the programme to introduce the 20 week anomaly scan to all expectant mothers nationwide . Minister Simon Harris forwarded my email to Mr McGrane and asked for him to meet with me regarding our campaign for anomaly scanning.
In recent weeks Mr McGrane has contacted me and welcomed an opportunity to meet with me to discuss the important issues raised in my email to the Minister.
I will be meeting with Mr McGrane at Tralee University Hospital on Wednesday 22nd February, he will also be joined with the recently appointed clinician, Dr Peter McKenna, who is the Clinical Lead for the Programme.
In the meeting I will be giving an insight from a parents perspective from our own personal journey and what we feel needs to be addressed, from the much needed scan to also highlighting the lack of after care service to families whose baby passes away, specifically for parents and the siblings.
If you have had a similar experience or know someone who has and would like to raise any questions please feel free to contact me prior to my meeting and I will ensure your voice is heard.
I will keep you all updated, and I know Isabella will be with me.
Mother to an angel
Labels: 20 week anomaly screening. expectant mothers, bereavement, chd awareness, HSE, Hypoplastic left heart syndrome, Ireland, The journey of a grieving mother
I have two children one of which gained her wings and became an angel at 6 days old. My mission is to create awareness for congenital heart disease (CHD) and promoting better screening for all ladies who are pregnant. We want to help any other parent who's child has CHD or who is walking the same path as ourselves of loosing a child. Our angel Isabella was sent here for a reason and I believe her story will do just that.