tag:blogger.com,1999:blog-55294445198655021072024-02-21T02:47:00.902-08:00Isabella's CHD Awareness & Pregnancy Screening CampaignAs a heart mummy to an angel called Isabella it is my mission to raise awareness of CHD
and promote the right for all women to be given a 'free detailed scan' nationwide here in Ireland during her pregnancy. Follow our campaign and our journey through grief as an angel parents. Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-5529444519865502107.post-50991170771348074412018-01-05T14:56:00.000-08:002018-01-05T14:56:17.673-08:00Hidden emotions ~My journey through grief<div class="separator" style="clear: both; text-align: center;">
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Sometimes it's hard to understand the link to our emotions to how we project ourselves, behind these eyes are tears and behind my tears is a sense of emptiness and defeat that sometimes my emotions get the better of me, that weak moment behind closed doors I am broken, broken to the understanding that I could not save our daughter, but behind all of these emotions is a sense of calm, why? Because I am a mother, a mother to our son, and a mother to our beautiful angel Isabella, you never get over grief and please do not tell anyone you do, your whole life will change, there will not be a day that goes by without the thought of your most dearest loss, but there is light, light that shines on you and your family, light that makes you realise how precious life really is and light that brings you memories no matter how short of time you had with them. We are all in this together, let's all support each other in our dark hours and make memories in our light hours #supportgriefawareness #mothertoanangel #chdawareness #heartwarriorMother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-15575582355848192942017-12-31T10:41:00.000-08:002018-01-05T14:58:51.944-08:00New year, New chapter 2018<br />
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Another year nearly down and ready for the next chapter in our lives, ready for the new year to make more amazing memories with my close friends and family and ready to learn more life lessons. Never a day goes by without remembering those precious moments with my amazing daughter who is always in my heart, still feels like it was only yesterday she was in my arms, and my dear grandad who I miss dearly. I've learned soo much this past year and embrace each day I have with my loved ones, feel incredibly lucky to have Kevin always by my side and Keelan who always wakes up with a smile on his face, I feel blessed to have my mum and nan and all our family and friends who support us in each and every way. Blessing all our angels in heaven and blessing you all for health, friendship, and love for 2018 and for ever more. Xxx<br />
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-75030696380748453212017-05-22T15:20:00.004-07:002017-05-23T13:37:43.434-07:00Happy 1st Birthday to our Angel Isabella <br />
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It's hard to believe it's one year today, all I keep thinking about is this time last year she was with us, I keep getting flash backs of the joy she brought us when she was born, and then the heartbreak and pain in which we could not save her.<br />
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I somehow found comfort in the fact that she was with us this time last year, and I am petrified of the thought now that i can no longer say this as crazy as it may sound.<br />
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We should be getting ready for her first birthday party, but instead I am trying to find something that is weather proof to place on her grave, something I never thought I would be doing.<br />
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In my head I want everything perfect and why not, I am still a mother who wants the best for her children. The process in which all parents have to go through, the first of anything is the hardest but keeping in mind that she is watching over us all and growing on the other side some how brings me to a smile.<br />
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Would you believe I saw a red butterfly today, it made me think of her, but this time it was not white as I would always see, it was a bright red, I like to think that's a sign from her telling me she is growing, and that she is around us always.<br />
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Happy 1st birthday our darling Isabella, from mum, dad and your big brother Keelan xx<br />
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-63316029247325891752017-05-15T13:38:00.000-07:002017-05-15T13:38:07.547-07:00Universal access to Foetal Anomaly screening to be made for Women Nationwide<div style="text-align: center;">
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<span style="font-size: 14pt;">Myself and
Kevin are delighted to announce the passing of a Dail Motion by Sinn Fein’s
Health Spokesperson T.D Louise O’Reilly who highlighted the current issues
within Irelands Maternity Services. The motion included universal access to
foetal anomaly screening across all Maternity Hospitals Nationwide, the full
implementation of the National Maternity Strategy and a commitment to work with
nursing and medical unions in the recruitment and retention of medical staff so
that all maternity hospitals meet the ‘Birth rate plus standard’ for midwifery
staffing, as well as international standards for consultant obstetricians and
gynecologists.</span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">Louise O’Reilly
has called on the Minister for Health to swiftly implement the commitments made
in the Dail with regards to the National Maternity Hospitals, she said that it
is now up to the Government to stand by their commitment and that she will be
following up with the Minister to ensure implementation of these incentives.
This is a major victory for Women’s Health and the Minister must now accept the
collective will of the Dail and act on the motion.<o:p></o:p></span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">Words will
never be able to describe our emotions, we are still travelling through our
journey of loss, but we will always truly believe our angel was sent to us for
a reason and this news just proved that. <o:p></o:p></span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">Since the
day I received a message from Cllr Damien Quigg who showed so much compassion
for our campaign and pure dedication we believed as a small group of people we
can make change. Cllr Damien Quigg connected us with T.D Louise O’Reilly during
our Dublin visit for my Ireland AM interview, and I will always remember
sitting in the room with my good friend Shauna, a fellow heart mum while we
both told her our stories, I knew instantly from her reaction that she would
not rest until our voices were heard and that is exactly what she did. <o:p></o:p></span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">All those
parents who spoke out about their heartbreaking experiences, the media who took
it in their stride to share our journeys, to Cllr Damien Quigg who supported
our campaign and set us in a direction were we would not have been able to go
without him, and to T.D Louise O’Reilly who made not only our voices heard but
the voices of all our angels in a place where change can be made, once implemented
babies lives will be saved as a diagnosis will be made prior to birth, and
parents to be, will be getting the service they deserve. <o:p></o:p></span></div>
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<span style="font-size: 14pt;">Its been
such an incredibly hard time for us this last year and our Isabella’s birthday
and anniversary is only around the corner but I truly hope with all my heart that
she knows she helped make this change. </span></div>
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<span style="font-size: 14pt;">In memory of our Isabella, our very own angel.</span></div>
<span style="line-height: 115%;"><span style="font-size: 14pt;"><o:p></o:p></span></span>Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-40463666810203342832017-02-20T13:35:00.000-08:002017-02-20T13:35:48.166-08:00Meeting with National Programme Director for Women and Infants’ Health<div class="MsoNormal" style="background: white; line-height: normal; margin-bottom: .0001pt; margin-bottom: 0cm;">
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<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 10.5pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-IE;">Well since we started our Isabella’s campaign to raise awareness of CHD
and promote that all women in Ireland should be entitled to the 20 week
screening, we’ve received continual support from many families who have
travelled a similar path as myself and Kevin, I feel through our own pain like
many others are going through, it helps to speak to those who know and feel the
same heartbreak. <o:p></o:p></span></div>
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<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 10.5pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-IE;">Reading peoples stories, some with happy endings and others with sad, it
really has given me even more drive to push this as much as we can. I still
remember writing all our memories of Isabella to try and keep her alive in us,
and even though she was only here on earth for a short time she incredibly left
her mark. <o:p></o:p></span></div>
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<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 10.5pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-IE;">With the help of the media making our voices heard the HSE are now listening.
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<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 10.5pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-IE;">Since we gained a response from the Minister for Health Simon Harris I received
an email from Kilian McGrane, who is the newly appointed ‘National Programme
Director for Women and Infants’ Health and will be rolling out the programme to
introduce the 20 week anomaly scan to all expectant mothers nationwide . Minister
Simon Harris forwarded my email to Mr McGrane and asked for him to meet with me
regarding our campaign for anomaly scanning.<o:p></o:p></span></div>
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<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 10.5pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-IE;">In recent weeks Mr McGrane has contacted me and welcomed an opportunity
to meet with me to discuss the important issues raised in my email to the
Minister. <o:p></o:p></span></div>
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<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 10.5pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-IE;">I will be meeting with Mr McGrane at Tralee University Hospital on
Wednesday 22<sup>nd</sup> February, he will also be joined with the recently appointed
clinician, Dr Peter McKenna, who is the Clinical Lead for the Programme.<o:p></o:p></span></div>
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<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 10.5pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-IE;">In the meeting I will be giving an insight from a parents perspective
from our own personal journey and what we feel needs to be addressed, from the
much needed scan to also highlighting
the lack of after care service to families whose baby passes away, specifically
for parents and the siblings.<o:p></o:p></span></div>
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<span style="color: #222222; font-family: "Arial","sans-serif"; font-size: 10.5pt; mso-fareast-font-family: "Times New Roman"; mso-fareast-language: EN-IE;"> <o:p></o:p></span></div>
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who has and would like to raise any questions please feel free to contact me prior
to my meeting and I will ensure your voice is heard.<o:p></o:p></span></div>
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will be with me.</span></div>
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-31554278958355762792017-01-19T10:57:00.000-08:002017-01-19T10:57:19.860-08:00Equal access to standardized ultrasound services to be implemented throughout all maternity units<br />
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<span style="font-size: 14.0pt; line-height: 115%;">I am
delighted to announce that since our campaign started for the right of all
expectant mothers to be given routine detailed screening, we are finally seeing
progress made. Minister for Health Simon Harris emailed me today confirming
that the HSE National Service Plan 2016 committed to the planning and development
of equitable access to antenatal anomaly screening throughout all maternity
units in the context of emerging maternity networks. <o:p></o:p></span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">In addition,
the National Maternity Strategy is now clear that all women must and will have
equal access to standardized ultrasound services. This strategy will be implemented
on a phased basis over the coming years which will be led by the National Women
& Infants Health Programme. <o:p></o:p></span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">The newly
appointed Director will be meeting with me in due course to discuss the
strategy going forward, in this meeting I will be also highlighting the after
care service for families who suffer loss of their baby, which through our own experience
is seriously neglected.<o:p></o:p></span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">Words cannot
describe how we are feeling now, from such a dark and sad time in our lives our
beautiful daughter shed some light from heaven, I knew in my heart she was sent
here for a reason, I am so proud of our angel. Our campaign was never darkened
around negativity, through our experience we saw a fault in the health care of
maternity services and in our daughters memory we simply did not want anyone
else to go through what we and many other families have gone through. I have
always said that we wanted to work alongside the HSE and not against it and now
they have started to implement a plan for all expectant mothers to receive
routine anomaly screening nationwide so if anything has been detected proper
procedures can be put in place before birth giving all babies a fighting
chance. <o:p></o:p></span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">I am blown
away from all the support we have received since Isabella was born and when she
grew her wings, I am so proud to be her mum, she is around us always and
throughout our campaign this miracle has just proved it. <o:p></o:p></span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">I will keep
you all updated on further progress as this is only the beginning. <o:p></o:p></span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">Mother to an angel </span></div>
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<span style="font-size: 14.0pt; line-height: 115%;">xoxox</span></div>
Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-39777677197188624282016-12-13T14:13:00.000-08:002016-12-13T15:32:24.474-08:00The months after is when you need support the most<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUQzNZDVXxGZqprjxAj9L2ZS6UlK2eJDEivrfqlQH4EjSCHP8URYQ7ZOnJpzcoqaRMHzQNGhkq_RDLnf5TgnCTQ8BgU7O_2WuxC6oCriJFY43drqaUKLuBqamTF06bqiXcbiPejiOKjpJa/s1600/CH6C1695-Edit.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="228" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUQzNZDVXxGZqprjxAj9L2ZS6UlK2eJDEivrfqlQH4EjSCHP8URYQ7ZOnJpzcoqaRMHzQNGhkq_RDLnf5TgnCTQ8BgU7O_2WuxC6oCriJFY43drqaUKLuBqamTF06bqiXcbiPejiOKjpJa/s320/CH6C1695-Edit.jpg" width="320" /></a></div>
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<span style="line-height: 115%;">I know it has been a while since my
last post, but I don’t want to just write every week, this is a real life
journey and I only write when I feel it is the right time to share my recent experiences I’ve had while living
life after great loss. <o:p></o:p></span></div>
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<span style="line-height: 115%;">Everyday life since losing Isabella
has changed, small things you don’t notice during your daily routines all of a
sudden becomes a big deal, at one point I felt every time I left the house all
I would see is babies and baby stuff everywhere; my anxiety grew so much I just
wanted to stay at home all the time, my house became my sanctuary for me, my
haven, my own space to lock myself away from society, I would always say to
myself, ‘how and when will I start to cope’.<o:p></o:p></span></div>
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<b><i><span style="line-height: 115%;">(In recent months i’ve found grief is truly like the ocean, it
comes in waves and sometimes can consume you when you least expect it, don’t fight
your emotions, roll with them like those waves, the more you fight and hold
back the worse you will feel to which point you may sink into the deep dark
obis of depression.)<o:p></o:p></span></i></b></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzeA_ui5q3SJbnRA63h52zBzDVS4XYudksU2zB3d8xYnHh8iNoGVnUkRge2XrnrW2XdpxVfdnDBPfTsrtfOMQZ17EWymgBUFkEYUREkzh47DZFMc4CnnqjNwSTX73d6WV74iQwZmOjkwpx/s1600/th.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzeA_ui5q3SJbnRA63h52zBzDVS4XYudksU2zB3d8xYnHh8iNoGVnUkRge2XrnrW2XdpxVfdnDBPfTsrtfOMQZ17EWymgBUFkEYUREkzh47DZFMc4CnnqjNwSTX73d6WV74iQwZmOjkwpx/s1600/th.jpg" /></a></div>
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<span style="line-height: 115%;">I wake up every
day to my routines of life itself, then all of a sudden it just hits me that I
lost my daughter and will never be able to hold her in my arms again, it really
does consume me at different times of the day but I am still learning to remind
myself of the fact we had the chance to look into her beautiful eyes, while she
stared right back at us knowing that she was loved unconditionally, these
thoughts are what keeps me looking forward. <o:p></o:p></span></div>
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<span style="line-height: 115%;"><br />
The support we had after Isabella was born and when she grew her wings was just
amazing, our close friends and family helped organise her burial and really
showed so much love and light during a time of such darkness. The following
weeks we had people calling to our house on a daily basis which kept us going
but looking back now I can see that it hadn’t sunk in still, we were numb, in
shock, I knew what had happened but I hadn’t processed the fact that we have
lost our baby girl. I do think that if it wasn’t for Keelan I could have sunk
much lower, but this is a point you feel you’re at a cross roads and must try
your best to continue on and learn to live your life after such a loss. </span>I remember so clearly waking up the following
morning after our final goodbye, the sun was shining so bright through our
curtains, we just laid there in silence, in a state of shock not knowing what
to do with ourselves, the door bell rang constantly by people calling to us,
and at the time I just wanted to be left alone, but I got up as I did not want
to look weak and then dived into washing all our clothes from Dublin, I washed
the same clothes 2 or 3 times just to keep myself busy, as crazy as it sounds
thinking about it now I just wanted to feel human again, I was trying to
imagine that I would be doing this if she was still there and asleep in her mosses
basket, I just wanted to feel like a mother to a new born baby while trying to
block out the pain in case I fell apart even though inside I was broken, empty
and felt useless.</div>
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<span style="line-height: 115%;">I have come to the realization that
support is needed more than ever months after losing a loved one, most people
would presume as months have passed you start to learn how to cope, as they say <i><b>‘time
is a great healer’ </b></i>which it is very true however, emotions would start to
sink in during the later stages of grief, when your days quieter down and people
stop calling as much, this is when you have more time to think to yourself
about what has happened, this is the crucial time you will need support. <o:p></o:p></span></div>
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<span style="line-height: 115%;">I am so thankful for my group of
close friends who have been travelling this journey alongside me, who knows
when I am having a bad day or week, who would call for a cup of tea to talk
about everything and listen to me, or just sit there in silence with me just so
I feel their company there with me, letting me know I am not alone.</span> I feel it is very important to share this if
you know someone who is currently grieving that support is very much needed when
months have passed, whether it’s a call, a text or just passing through for tea
anything just to show that someone is still thinking of you would mean the absolute
world, I know this because it means everything to me and has helped me get
through the dark days.</div>
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<span style="line-height: 115%;">If you are the one going through the
pain of loss you must keep talking and if you need someone to listen to you,
you must pick up your phone or call to your friends or families house because
talking is key to a healthy mind, remember it’s not getting over something like
this it is learning to cope with it, this is what I have learned so far and still have so much to come. <o:p></o:p></span></div>
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<span style="line-height: 115%;">Thank you to my friends and family
xoxox<span style="font-size: 16pt;"><o:p></o:p></span></span></div>
Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-29135539857963334142016-11-12T10:06:00.001-08:002016-11-12T10:51:53.967-08:00Isabella's CHD Awareness & Pregnancy Screening Campaign Video ~ Please share <div class="separator" style="clear: both; text-align: center;">
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I created this video to help promote our campaign for all women in Ireland to be entitled to a<br /> ' free routine 20 week scan'.</div>
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When our beautiful baby Isabella was born we were told everything was fine until a few hours passed and she had to be rushed to Dublin finding out that she had Hypo-plastic Left Heart Syndrome along with many other complications with her heart, they could not offer her surgery and so she grew her wings 5 days later. </div>
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Isabella's fate could not have been changed however if it could have been different and she could have had surgery she could of well passed away upon birth as her heart condition was not picked up as this simple scan is not offered to all expectant women in Ireland. </div>
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We do not want any other parent to go through the journey we have and are still going through.</div>
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We are waiting for Minister of Health Simon Harris to listen to our story and hopefully together make some change for our future babies of Ireland.</div>
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<iframe width="320" height="266" class="YOUTUBE-iframe-video" data-thumbnail-src="https://i.ytimg.com/vi/RDM6AOmpfjU/0.jpg" src="https://www.youtube.com/embed/RDM6AOmpfjU?feature=player_embedded" frameborder="0" allowfullscreen></iframe></div>
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Please share, thank you </div>
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Mother to an angel xx</div>
<br />Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-88219767206986925752016-11-12T10:06:00.000-08:002016-11-12T10:11:50.580-08:00Is it just coincidence or is our angel talking to us?<div style="text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtNQJxUBqBZm1B11WbHske1t1J9-Mjc8IW7HDP1iO_Q40U9R-d_UlB6RD9oUwzjXR3dKKK6nsqjwIwObc0juBL6SpNW7wfHj8Pz5WzmIzh0lxdjtvJvRHZX_Zl5rpnivtvvbhRbvRAehWu/s1600/baby-angel-ii.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtNQJxUBqBZm1B11WbHske1t1J9-Mjc8IW7HDP1iO_Q40U9R-d_UlB6RD9oUwzjXR3dKKK6nsqjwIwObc0juBL6SpNW7wfHj8Pz5WzmIzh0lxdjtvJvRHZX_Zl5rpnivtvvbhRbvRAehWu/s320/baby-angel-ii.jpg" width="249" /></a></div>
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<span style="line-height: 115%;">I am a big believer
in life after death, I have been since I was a little girl through my own personal
experiences, I think when someone close to you passes away you just have hope to
have some kind of sign from them to let you know they are ok, but at the same
time you do not want to drive yourself mad looking for it and be disappointed if
you don’t see or hear from your loved one. <o:p></o:p></span></div>
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<span style="line-height: 115%;">I am open
about what I believe in and accept everyone has their own opinions about this
topic but I wanted to write about this as I feel many people who has suffered
loss always wonders if their loved ones are around them and some may even crave
for some kind of sign which is exactly how I feel.<o:p></o:p></span></div>
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<span style="line-height: 115%;">Only last
week myself and Kevin were in our local Smyths store starting our Christmas
shopping, we don’t get to do too many things with just ourselves as we are
always busy so it was nice to have some quality time with just the two of us,
as we waited in the queue with our hands full of prezzies I noticed this little
girl skipping past me with long dark hair she was stunning, my heart melted and
just smiled to myself trying to keep it together in front of Kevin and of
course everyone else around me, it was when I heard her mother call her name ‘Isabella’....
I literally lost my breath from the pure shock of hearing her name, I looked directly
at Kevin and his face just turn pure white, I wanted to drop everything and
run, I could not believe it out of all the names we hear hers, I have never
heard her name before as it is unusual which is why we choose it, why did we
hear it, how was it that out of all of the places in the shop she said her name
right in front of us, we walked out and tears were just pouring down my face
feeling the pain of emptiness and realizing that we should be shopping for our
2 children and not one.<o:p></o:p></span></div>
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<span style="line-height: 115%;"> As we drove back I thought to myself, what if
this was meant to happen but to not upset us but as a message to let us know
she is around us always, I suppose it is turning a negative situation into a
positive and seeing things in a different light instead of darkness.<span style="font-size: 16pt;"><o:p></o:p></span></span></div>
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During
Isabella’s burial I asked one of my good friends to arrange a white dove to be
released, I thought this could be a symbolic sign for her spirit to be released
to the heavens above, my heart melted when she walked up towards us with a
beautiful white basket, she opened it up and there the dove looked at us and
then flew up into the sky, I looked up and noticed the sun breaking through the
fluffy clouds as if an opening appeared welcoming our baby girl.<br />
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<span style="line-height: 115%;">A few days past when Kevin’s brother said that he went to visit her grave and noticed a
white butterfly on her cross, as soon as I heard I liked to think it was her
letting him know she was still around, that very same week Kevin was in the
garden and felt something on his hand, to his amazement it was a white
butterfly, as he told me I could see in his face full of hope that it was a
sign but I couldn’t help feel the emotion of jealously, why not me? Why as her
mother have I not had a sign, I felt maybe I did do something wrong that I didn’t
deserve it, but not long after she did said hello or so I like to believe. <span style="font-size: 16pt;"><o:p></o:p></span></span></div>
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<span style="line-height: 115%;">I remember
it was the day of Bike Fest in Killarney, one of Kevins good friends arranged
for him to have a tattoo to honor our Isabella which meant the world to Kevin,
I remember I was sitting in the garden looking up in the sky waiting to leave,
I looked across the garden and there the white butterfly flew across and over
the fence, there it was my little sign, a tear ran down my cheek knowing in my
heart she was letting me know she was around, that very same day my Nan called
to check up on me I remember her words as clear as day, she said <i>‘ I am sitting here in the sun in my garden
and I saw a beautiful white butterfly just came out of nowhere and flew right
in front of me and it reminded me of our Isabella’ </i>the phone went quite as I tried to process
what my Nan just said to me, did I tell her? No I didn’t, out of anything that
could have happened as a sign it was linked to a white butterfly, I then
explained to her what has been happening and she said that it sounded like she
wanted us to know she is always around. <o:p></o:p></span></div>
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<span style="line-height: 115%;">I know this
may sound out there, but isn’t it lovely to think something like this is symbolic,
what is the harm in thinking this way? There is no harm in thinking or
presuming this being linked but you would have to question is this just a
coincidence? or is our little angel talking to us in her own little way,
letting us know that she is still around us....well, I like to think it’s her,
if you have a loved one and notice a sign, do not just ignore it and think you
are just over thinking it, you should embrace it, believe it is a message from
above saying hello, they are ok and they will always be around you..<span style="font-size: 16pt;"><o:p></o:p></span></span></div>
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<span style="line-height: 115%;">Mother to an angel xx</span></div>
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-75468323873201176022016-10-26T04:59:00.000-07:002016-10-26T11:17:43.833-07:00The journey of a grieving mother<!--[if gte mso 9]><xml>
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‘I am sorry but there
is nothing we can do to save your daughter’ these are the words that constantly
replay around in my head, visions of me holding her with her big beautiful eyes,
remembering every single expression she done while here on earth, from the
small lines on her forehead as she looked up at me, to her perfectly shaped
little mouth that I used to stroke ever so gently. No one can comprehend the
loss of your own child unless they have walked the same path, from witnessing
her last breath and yet feeling totally helpless as a parent to save her,
something that was my duty, a duty to protect a duty that goes beyond anything
else, a duty I feel as a mother failed to do.</div>
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Since we found out we
were expecting, I made sure that everything I was eating and drinking would
benefit our baby, I didn’t smoke or drink, I ate more veg, fruit, salad and
drank as much water as I could, I stayed at home most of the time but I was
happy, happy to ensure that our baby was safe and everything was going to be
perfect.</div>
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The day we travelled back
to Kerry was the same day we laid our daughter to rest, that very same evening
we walked into our house, I remember it was quiet, I walked upstairs and there in
front of me was the door for her nursery, untouched, everything in place ready
for her, I grabbed my stomach and all of a sudden I felt ‘emptiness’, despair, sadness,
failure of a mother, I walked into her room, everything was perfectly placed,
her cot, changing station, nappies and baby wipes stocked up, even a towel
ready by the side for her first wash, I looked down at my hands and nothing was
there only drops of my tears. I sat on the floor and cried so hard it hurt,
clenching on her blanket so tight, I held it as if she was there, just trying
to see if I could feel like how it should be, am I going mad? No, I just could
not register that she was gone and I was to never see her again in this life. <span style="mso-spacerun: yes;"> </span>I remember the curtains in her room were open,
the stars were so bright that night, I walked to the window and felt a wave of calm
that she was there with me watching me through the stars.</div>
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During her burial I
felt I could not let my true emotion out, if I started to cry I was petrified
that I would not stop, I would collapse and not get back up, I have this
constant feeling that my body had failed my daughter, that it was my fault she
is not here today, the least I could of done was be strong for her before she
flew with the angles, just like she was strong for us by giving us time.</div>
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It has already been 5
months since we welcomed her here and my heart is still so raw, I feel so much
fear as time goes on, as my memories of her become slightly more faded, the
emptiness has grown even more while I am here at home, I should have lack of sleep,
I should be making bottles and have washing so high I don’t know where to
start, but as soon as Keelan has gone to school I am left in the house of
silence ... I look around and feel deflated, I try and keep myself busy making
sure the house is perfect, washing is done but I find myself looking at the
time counting down the hours Keelan will be home, to see his smile again, tell
me about his day work together on his homework, then its time to make the
dinner, Kevin comes home talks about his day I clean up after dinner, chill out
then bedtime and repeat all the above. Being at home alday is a constant
reminder of someone precious that I do not have, go for a walk I say, it will
do me some good, so I do I start to feel positive again, I am walking taking in
the fresh air, I then look ahead and see a lady with a pram, my heart races every
time, it’s not their fault but in my mind it brings back the constant reminder
of my most biggest loss. </div>
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The eagerness of
wanting some normality is taking over, I want to get back into work I am ready
and so the job search continues sending CV’s and not hearing back makes me feel
even more worthless, the recent loss of my granddad who was such a large factor
in my life overwhelms me, is my life ever going to give me a break? I know
there is always someone else more worse off but this is my feelings, my
emotions and my battle as an angel mum which I think many other angel mums
could relate too. I envy those people who have their career, see and talk to
different people every single day, I am doing everything I can to get back in
to some normality but I have to keep reminding myself that things do take time,
grief is a process and I am only at the beginning. I have Keelan to think about my son who is my world, so I must try and pick myself up again and so I am starting tonight by going for a long walk, I now want to focus on getting myself fit agian mind and body, i've got to do this, I will do this and any bumps along the way I will jump over them with pure determination.<br />
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This is only the beginning of my journey....<br />
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Mother to an angel xox </div>
Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-58549581286548113742016-10-21T13:24:00.000-07:002016-10-21T13:28:02.289-07:00Campaign Update - Letter to Minister for Health <div style="text-align: center;">
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<b>Email sent to Minister for Health Simon Harris regarding our meet request</b></div>
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Dear Minister,</div>
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Further to the full support from the ‘Southern Regional Health Forum’ I would like to ask for an opportunity to meet with you and discuss our campaign which highlights just how crucial it would be to have routine detailed screening available to all expectant mothers.</div>
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With a routine detailed 20 week scan put in place this will relieve much strain for Crumlin as plans can be put in place prior to the birth. Currently babies who need immediate medical attention must wait for the arrival of an ambulance then they must be transported to Dublin which can take a considerable amount of time, which in most cases they simply do not have.</div>
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If a routine detailed 20 week scan was implemented and a diagnosis was made prior to the birth, a surgical plan can be made and the mother would have the opportunity to make arrangements to deliver her baby in Dublin which would also increase the survival rate of the baby. We understand that our daughter could not have been saved, however we are speaking from our own personal experience as we wish no other parent to have to go through what we have gone through, we are also speaking on behalf of the hundreds of parents who have contacted us and bravely shared their stories of babies who did pass away because a diagnosis was not made.</div>
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Minister we ask if you could meet with us at your earliest convenience to discuss our campaign further, we hope through our letter to you, you can understand the urgency to address the current screening procedures and hopefully going forward we could have an opportunity to work alongside the HSE.</div>
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Thank you for your time, and we look forward to receiving your response.</div>
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Kindest regards</div>
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Jazmine Sands </div>
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<b>Response from office of Minister for Health Simon Harris </b></div>
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<i><span style="background-color: transparent; font-family: Arial, Helvetica, sans-serif; font-size: small;">Received on 11th October 2016</span><span style="background-color: transparent; font-family: Arial, Helvetica, sans-serif;"> </span></i></div>
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<span style="color: #222222; font-family: Arial, Helvetica, sans-serif; font-size: small;"><span style="font-size: 12.8px;">Ref:</span><span style="font-size: 12.8px;"> </span><span style="font-size: 12.8px;">MSH953-16</span><span style="font-size: 12.8px;"> </span></span></div>
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<span style="color: #222222; font-family: Times New Roman; font-size: small;"><span style="font-family: Arial, Helvetica, sans-serif; font-size: 12.8px;">Ms Jazmine Sands </span></span></div>
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<span style="color: #222222; font-size: 12.8px;"><a href="mailto:jazminesands@gmail.com" style="color: #1155cc;" target="_blank">jazminesands@gmail.com</a></span><span style="color: #222222; font-size: 12.8px;"> </span></div>
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<span style="color: #222222; font-family: Arial, Helvetica, sans-serif; font-size: small;"><span style="font-size: 12.8px;">Dear Ms Sands</span><span style="font-size: 12.8px;"> </span></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="font-size: 12.8px;">I wish to acknowledge receipt of your recent letter requesting the </span><span class="il" style="font-size: 12.8px;">Minister</span><span style="font-size: 12.8px;"> to meet with you to discuss your campaign to have routine detailed screening available to all expectant mothers.</span></span></div>
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<span style="color: #222222; font-family: Arial, Helvetica, sans-serif; font-size: 12.8px;"><span style="font-size: 12.8px;">Your letter will be brought to the attention of the </span><span class="il" style="font-size: 12.8px;">Minister</span><span style="font-size: 12.8px;"> at the earliest opportunity.</span><span style="font-size: 12.8px;"> </span></span></div>
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<span style="color: #222222; font-family: Arial, Helvetica, sans-serif; font-size: small;"><span style="font-size: 12.8px;">Yours sincerely</span><span style="font-size: 12.8px;"> </span></span></div>
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<span style="color: #222222; font-family: Arial, Helvetica, sans-serif; font-size: small;"><span style="font-size: 12.8px;">David O'Connor</span><span style="font-size: 12.8px;"> </span></span></div>
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-13179449920717400412016-10-18T06:06:00.000-07:002016-10-18T06:06:49.512-07:00 Our Wave of Light for Isabella and all angel babies worldwide <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMcCpiAv3DK7_3ncpV4FA09Qy4GE-b_XoM-RujRTPFvD-gcc1I2fyst2L8wKi2X8keexnuEobGEfjukARquhOKg8t0q5l-Wg8J4ZqqY_A-hJb5nUZjmNpvi61KDdKRbvrOUXJZS0i9MZcY/s1600/14700902_10210007500331272_1532839825102948440_o.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMcCpiAv3DK7_3ncpV4FA09Qy4GE-b_XoM-RujRTPFvD-gcc1I2fyst2L8wKi2X8keexnuEobGEfjukARquhOKg8t0q5l-Wg8J4ZqqY_A-hJb5nUZjmNpvi61KDdKRbvrOUXJZS0i9MZcY/s320/14700902_10210007500331272_1532839825102948440_o.jpg" width="320" /></a></div>
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<span style="background-color: white; color: #1d2129; font-family: helvetica, arial, sans-serif; font-size: 14px;">As today is International Babyloss Awareness day, we are taking part in the International Wave of Light this evening. As bereaved parents ourselves we join the many other parents of angels from all over the world in lighting a candle for all our angel babies who have changed our lives forever. Today we honour and remember our babies in heaven and let them know we are thinking of them always. Isabella is our daughter in the sky and we miss her so much, love you Isabella with all our hearts xox </span></div>
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<span class="_5afx" style="background-color: white; color: #365899; cursor: pointer; direction: ltr; font-family: inherit; font-size: 14px; text-decoration: none; unicode-bidi: isolate;"><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/isabellaschdawareness?source=feed_text&story_id=10210007500251270" style="background-color: white; color: #365899; cursor: pointer; font-family: helvetica, arial, sans-serif; font-size: 14px; text-decoration: none;"><span aria-label="hashtag" class="_58cl _5afz" style="background-color: white; color: #4267b2; cursor: pointer; font-family: inherit; font-size: 14px; text-decoration: none; unicode-bidi: isolate;">#</span><span class="_58cm" style="background-color: white; color: #365899; cursor: pointer; font-family: inherit; font-size: 14px; text-decoration: none;">isabellaschdawareness</span></a></span><span style="background-color: white; color: #1d2129; font-family: helvetica, arial, sans-serif; font-size: 14px;"></span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/internationalwaveoflight?source=feed_text&story_id=10210007500251270" style="background-color: white; color: #365899; cursor: pointer; font-family: helvetica, arial, sans-serif; font-size: 14px; text-decoration: none;"><span class="_5afx" style="direction: ltr; font-family: inherit; unicode-bidi: isolate;"><span aria-label="hashtag" class="_58cl _5afz" style="color: #4267b2; font-family: inherit; unicode-bidi: isolate;">#</span><span class="_58cm" style="font-family: inherit;">internationalwaveoflight</span></span></a><span style="background-color: white; color: #1d2129; font-family: helvetica, arial, sans-serif; font-size: 14px;"> </span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/waveoflight?source=feed_text&story_id=10210007500251270" style="background-color: white; color: #365899; cursor: pointer; font-family: helvetica, arial, sans-serif; font-size: 14px; text-decoration: none;"><span class="_5afx" style="direction: ltr; font-family: inherit; unicode-bidi: isolate;"><span aria-label="hashtag" class="_58cl _5afz" style="color: #4267b2; font-family: inherit; unicode-bidi: isolate;">#</span><span class="_58cm" style="font-family: inherit;">waveoflight</span></span></a><span style="background-color: white; color: #1d2129; font-family: helvetica, arial, sans-serif; font-size: 14px;"> </span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/nilmdtsireland?source=feed_text&story_id=10210007500251270" style="background-color: white; color: #365899; cursor: pointer; font-family: helvetica, arial, sans-serif; font-size: 14px; text-decoration: none;"><span class="_5afx" style="direction: ltr; font-family: inherit; unicode-bidi: isolate;"><span aria-label="hashtag" class="_58cl _5afz" style="color: #4267b2; font-family: inherit; unicode-bidi: isolate;">#</span><span class="_58cm" style="font-family: inherit;">nilmdtsireland</span></span></a><span style="background-color: white; color: #1d2129; font-family: helvetica, arial, sans-serif; font-size: 14px;"> </span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/angelmum?source=feed_text&story_id=10210007500251270" style="background-color: white; color: #365899; cursor: pointer; font-family: helvetica, arial, sans-serif; font-size: 14px; text-decoration: none;"><span class="_5afx" style="direction: ltr; font-family: inherit; unicode-bidi: isolate;"><span aria-label="hashtag" class="_58cl _5afz" style="color: #4267b2; font-family: inherit; unicode-bidi: isolate;">#</span><span class="_58cm" style="font-family: inherit;">angelmum</span></span></a><span style="background-color: white; color: #1d2129; font-family: helvetica, arial, sans-serif; font-size: 14px;"> </span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/isabella?source=feed_text&story_id=10210007500251270" style="background-color: white; color: #365899; cursor: pointer; font-family: helvetica, arial, sans-serif; font-size: 14px; text-decoration: none;"><span class="_5afx" style="direction: ltr; font-family: inherit; unicode-bidi: isolate;"><span aria-label="hashtag" class="_58cl _5afz" style="color: #4267b2; font-family: inherit; unicode-bidi: isolate;">#</span><span class="_58cm" style="font-family: inherit;">isabella</span></span></a></div>
Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-60250092391731150492016-10-18T04:20:00.000-07:002016-10-18T04:20:58.399-07:00Letter to Minister for Health Simon Harris <br />
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<span style="font-family: Arial, Helvetica, sans-serif;">Below is the letter I have sent to the Minister on 5/10/16, I have yet to gain a response however I have amazing people supporting me who are doing everything in their power to push for this crucial meeting that without a doubt must take place. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">I will continue to keep everyone updated on our progress and will continue to drive our campaign this as much as possible. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Mother to an angel xox</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Dear Minister,</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Further to the full support from the ‘Southern Regional Health Forum’ I would like to ask for an opportunity to meet with you and discuss our campaign which highlights just how crucial it would be to have routine detailed screening available to all expectant mothers.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">With a routine detailed 20 week scan put in place this will relieve much strain for Crumlin as plans can be put in place prior to the birth. Currently babies who need immediate medical attention must wait for the arrival of an ambulance then they must be transported to Dublin which can take a considerable amount of time, which in most cases they simply do not have.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">If a routine detailed 20 week scan was implemented and a diagnosis was made prior to the birth, a surgical plan can be made and the mother would have the opportunity to make arrangements to deliver her baby in Dublin which would also increase the survival rate of the baby. We understand that our daughter could not have been saved, however we are speaking from our own personal experience as we wish no other parent to have to go through what we have gone through, we are also speaking on behalf of the hundreds of parents who have contacted us and bravely shared their stories of babies who did pass away because a diagnosis was not made.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Minister we ask if you could meet with us at your earliest convenience to discuss our campaign further, we hope through our letter to you, you can understand the urgency to address the current screening procedures and hopefully going forward we could have an opportunity to work alongside the HSE.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Thank you for your time, and we look forward to receiving your response.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Kindest regards</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Jazmine Sands</span></div>
Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-7331853448638473592016-10-14T15:04:00.001-07:002016-10-14T15:04:51.071-07:00International Wave Of Light <div style="text-align: center;">
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<span style="font-family: Arial, Helvetica, sans-serif;"><b>O</b>ctober pregnancy and infant loss awareness month<br /></span><b><span style="font-family: Arial, Helvetica, sans-serif;"><span style="font-size: small;">Light a candle on Saturday 15th October at 7pm to honour all angel babies </span> </span></b></h3>
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<span style="font-family: Arial, Helvetica, sans-serif;">As October is pregnancy and infant loss awareness month, we as angel parents are taking part in the 'International Wave of light' event and would like to invite all our friends, family and all those who have gained an angel baby or child. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Lets shed some light to create awareness and support to those who have walked the same path as us of loosing a child, lets honor and remember our beautiful angels in heaven, please join us by lighting a candle tomorrow (Saturday 15th October) at 7pm (GMT) for at least one hour.</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;">Join people worldwide to help create awareness by posting a picture of your light on your facebook page and share with us on our Isabella's campaign by<a href="https://www.facebook.com/groups/1664217203893885/" target="_blank"> </a><b><a href="https://www.facebook.com/groups/1664217203893885/" target="_blank">clicking here</a> </b>and remember to include hashtags #internationalwaveoflight #waveoflight #angelbabies #nilmdts</span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"><i>Let us together send light to our angels </i></span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"><i>Mother to an angel xox</i></span></div>
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-1878616166083568712016-10-12T04:27:00.000-07:002016-10-12T13:54:36.876-07:00A brother’s love for his dying sister – how to explain the inevitable to siblings <div style="text-align: center;">
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Many people have asked me, how we handled our son Keelan
when the doctors told us about Isabella, and the answer I always give is we
were honest with him from the start.</div>
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I suppose the hardest part was knowing that Keelan already
said hello to his sister and that we told him already that his sister was
coming home that Friday, he was so excited becoming a big brother, I remember
sitting on the bed with Keelan after he saw Isabella with his dad when the
doctor and nurse came into the ward and asked to see myself and Kevin in a private
room, my heart sank as I knew there was something serious wrong by the look on
their faces, I looked at Keelan and he had the biggest smile on his face not
knowing what was happening, that is what
gets to me more about her heart condition not being picked up, our son had to
suffer the rollercoaster ride of emotion, something no sibling should ever go
through.</div>
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After we were told that she appeared to have complications
with her heart and that she was being sent to Crumlin, we were in a state of
shock, how could our precious baby girl who looked perfect and healthy have something wrong with
her? How serious is this? Is this life threatening? How are we meant to go out
of this room and explain to our son what is going on? Is he going to
understand? All of these questions were running around in our heads, I wanted
to go with her in the ambulance but I was not aloud after surgery, Kevin had to
go up alone in case paper work had to be signed but I don’t want him to be
alone and I don’t want my baby girl to not have her mum next to her. You simply
cannot process anything, all I knew is that I had to be truthful to Keelan, he
is 7 yrs old and has a good understanding about life itself, I strongly believe
as it was his sister he had the right to know the truth, if I tried to sugar
coat this it would be so much harder for him to process if anything was to
happen which at the time I would of never dreamed of. </div>
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We sat Keelan down and I said that the doctors have found
that Isabella’s heart is very sick and they are going to send her to a very special
hospital in Dublin where they are going to do everything they can to make her
better, but there maybe a chance she may fly with the angels. It took all my
strength not to collapse on the floor in front of my son, but if I looked
strong, he will be strong, he replied and said ‘ok mummy, I will say a little
prayer for my sister to get better so we can bring her home. As I stayed in
Kerry hospital for the next two days I spent as much time as possible with him
as I knew once I get to Dublin I wouldn’t know when I would be back down, the
night before I left my mum brought him down and I asked for her to go back to
my house to collect more stuff and to leave Keelan with me, that was quality
time we needed and time which became so important to ensure that he understood
what was going on.</div>
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I remember months prior to having Isabella my granddad (Keelan’s
great granddad) was very ill with cancer, I knew I had to prepare Keelan for
the inevitable, we visited him in the hospital but once he really started to deteriorate
I didn’t have the heart for Keelan to see him anymore, I wanted him to remember
him looking well and able to crack his jokes as always. To prepare Keelan I got
him a book about life and death so he would have a greater understanding for
the sad time that I knew was upon us, this really did help him, however I never
knew that this would be of use to help him through losing his baby sister. </div>
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As I was in Crumlin Isabella’s condition is looking more
serious but we had yet to find out what was going on, until we had our meeting
with her doctors and was told that there was nothing they can do. Our hearts
broke into a million pieces; Kevin looked at me with despair and said ‘<i>how are we going to tell Keelan’</i> I said ‘<i>the truth’</i>. At first Kevin was hesitant
to let Keelan come up but I said we must give him a choice, he will never get a
second chance to say goodbye. I remember being at Kevin’s brother house Micheal
who is Isabella’s godfather, he lived down the road from Crumlin so we were
staying with him, he looked after us through our entire journey, he sat us down
in the living room and then we made the phone call, we had him on speaker phone
both trembling with immense sadness and fear in how we are going to tell our
son what is going on and how is he going to react. Kevin talked first then
paused, he couldn’t go on, I took over and started to explain, I told Keelan
that the doctors could not fix Isabella’s heart because it was too sick and
that she will be flying with the angels soon, the phone went quiet, I continued
and said that we are giving him a choice if he would like to come up and say
goodbye or if he wanted to stay at home? He replied that he wanted to be the
best big brother and say goodbye to his sister, we was incredibly proud of him
as we knew that this was no easy decision to make for a 7 year old.<br />
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Keelan came up on the Friday with all of the family,
amazingly Isabella gave us precious time so that Keelan had a chance to say
hello again and give her cuddles and kisses before she grew her wings. She was
christened at 4pm and we had a private photographer from NILMDTS to take photos
of her later that evening in her final hours with us, photos of Keelan holding
her, and our little family altogether which will forever be cherished, making those
memories that will now last a lifetime.</div>
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Isabella passed away early Saturday morning on my chest, we
brought her down to Kerry for her burial that same day, we brought her down to
Kevin’s dad house in Killorglin, so many people were there wanted to pay their
respects, Keelan wanted to help his dad place her in her little pink casket,
something that I would never expect for him to do but he wanted to, a sense of
a duty being her older brother. She layed there just looking like she was
sleeping, so beautiful and at peace, that was when it finally sunk in what had
happened, myself, Kevin and Keelan broke down together holding each other so
tight, a bond that will never brake. We did choose for Keelan not to attend Isabella’s burial as he had
already been through so much at this stage we felt that he said his goodbye’s
and now it was our turn to say goodbye. </div>
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Kevin walked out of his dad’s house holding little Isabella’s
casket so tight in his arms, while I walked behind him, the sun shining down on
us, the clouds were so fluffy in the sky, the river was sparkling and so many
swans gathered around the water’s edge, now it was time for us to say goodbye
to our darling Isabella. </div>
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I wanted to share this as I feel it is so important to see
from personal experiences how we as parents dealt with a situation that was
thrown to us, everybody has their own ways in parenting, but I just wanted to
show that being truthful to our children is the best way for them to learn
about life and death and how they begin to process this in their own way. We
all want to protect our children from pain and never want to see them cry, but
I think if we tell them nothing bad is going to happen and it does, it could
create a full sense of confusion and leave them thinking negative thoughts
about every situation they are told '<i>everything
is ok, and you don’t need to worry’ </i>but if you sew the seed of maybe this
could happen but they are in the best care possible, this not only tells the
truth but also adds a percentage of preparing for the worse. This can be
relating to any family member, friend of family or even the families pet.</div>
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I like to say ‘preparation is key’ and it is especially for
siblings in circumstances like ours, this is why our campaign is so important
to get through to the Minister for Health that if Isabella’s heart condition
was picked up, and knowing that she could not of been saved we could of prepared
Keelan for the worse, however because the resources are not available to us
within the hospital our son said hello to his healthily sister then days later
goodbye, if that is not confusing I do not know what is and all because our
health system failed us. We know our Isabella could not have been saved,
however we want to save any other parents from the heart break of what we have
gone through.</div>
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Mother & brother to an angel xoxox</div>
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-9430659118687702092016-09-24T09:17:00.000-07:002016-09-24T09:23:29.703-07:00Campaign Update - Response from the 'Regional Health Forum' <br />
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Since our latest post showing a very weak response from the Minister for Health Simon Harris, regarding our meet request which was raised as a Parliamentary Question within the Dail by T.D Lousie O'Reilly, it was made quite clear that he was not understanding our campaign and that we just wanted to raise our own personal case were in fact we want to highlight concerns we have for the current maternity screening procedures for all expectant mothers nationwide.</div>
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Cllr. Damian Quigg who is working alongside us with our campaign attended the 'Southern Regional Health Forum' meeting on Thursday 22nd September. Cllr. Damian Quigg tabled on our behalf the Notice of Motion which outlines our campaign, see below;<br />
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<b><u>Notice of Motion</u></b></div>
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<i>That this Forum support my Notice of Motion to put measures in place where all expectant women would receive free routine detailed scans in order to rule any organ deficiencies prior to birth of their child. Cllr. Damian Quigg</i></div>
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Further to the forum's response to the above it is with absolute delight to tell you all that the notion was fully supported by all the members of the Board. This means that it was agreed to call upon the Minister for Health Simon Harris, to meet with us were we would have the opportunity to share our experience, demonstrate the flaws within the current maternity screening and present a much needed change. <br />
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See below letter from the 'Southern Regional Health Forum' sent to the Minister. </div>
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We know that there is still a long way to go, however we are heading in the right direction and hopefully a meeting will be arranged very soon. I will also be sending the Minister a letter also requesting for a meeting. </div>
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I just wanted give a very special thank you to, Cllr. Damian Quigg who has given us all incredible support for our campaign, it is such a pleasure to have you by our sides. </div>
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As always we will keep you all posted for any updates, and thank you all for your support.<br />
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Mother to an Angel </div>
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xoxo</div>
<br />Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-20377551495852093422016-09-20T12:44:00.000-07:002016-09-20T12:44:14.076-07:00Dail PQ & Reply from the Minister for Health (Simon Harris T.D.) for meet request<div style="text-align: center;">
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<span style="font-family: inherit; margin-left: 1em; margin-right: 1em;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuzVPwQSx5r4fjrSFiJyJu6H_FljeyskDneJTcOdI2BsrxFg2F0l69_7HgF7lIq8GG1ANcBCpM8kUWfQjw8YZqoXSP5HrB4bOgUN0ez414gyNhgqamh7Otwb-tmvw_uGNuO70NR8WcpdUX/s1600/ZIMG_8814.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuzVPwQSx5r4fjrSFiJyJu6H_FljeyskDneJTcOdI2BsrxFg2F0l69_7HgF7lIq8GG1ANcBCpM8kUWfQjw8YZqoXSP5HrB4bOgUN0ez414gyNhgqamh7Otwb-tmvw_uGNuO70NR8WcpdUX/s320/ZIMG_8814.JPG" width="320" /></a></span></div>
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<span style="font-family: inherit;">The first step has been taken to seek a meeting with the Minster for Health Simon Harris, to be honest I was hoping to have received a better response regarding the severity of our current pregnancy screening routine nationwide. I know I have much trust with the people who are standing by our sides in order to obtain this meeting. Louise O'Reilly TD and Cllr. Damian Quigg have both stressed that they will not give up.</span><span style="font-family: inherit;">Our next step now is to wait for a response from Cllr. Damian Quigg after his meeting at the 'Southern Regional Health Forum' he will be obtaining contact information for me to use in order to receive a response directly from the HSE, I will also be writing a follow up letter to the Minister himself that I wish to meet with him to discuss our campaign and the reasons behind our ultimate goal on behalf of all parents that have had a similar experience and of course those future parents that this could also happen too. </span></div>
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<b><span style="font-family: inherit;">Email from Louise O'Reilly TD</span></b></div>
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<span style="font-family: inherit;">A chara,</span></div>
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<span style="font-family: inherit;">Following on from our meeting, I submitted a pq to the minister, asking if he will meet you. I have attached the response below. I would advise from reading it, that you write/email the Minister seeking this meeting and indeed also do the same of the HSE. You can cc me in on this email or send me a copy of the letter so that I may follow up on this, to ensure a meeting takes place.</span></div>
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<span style="font-family: inherit;">I will do everything in my power to help you in your campaign.</span></div>
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<span style="font-family: inherit;">Is mise,</span></div>
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<span style="font-family: inherit;">Louise O'Reilly TD</span></div>
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<b><span style="font-family: inherit;">QUESTION NO: 1392</span></b></div>
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<b><span style="font-family: inherit;">DÁIL QUESTION addressed to the Minister for Health (Simon Harris T.D.)</span></b></div>
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<b><span style="font-family: inherit;">by Deputy Louise O'Reilly</span></b></div>
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<b><span style="font-family: inherit;">for WRITTEN ANSWER on 16/09/2016 </span></b></div>
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<i><span style="font-family: inherit;"> * To ask the Minister for Health if he will meet with a person (details supplied) regarding issues on maternity services; and if he will make a statement on the matter.</span></i></div>
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<span style="font-family: inherit;">At the outset I would like to offer my sincerest condolences to the family involved in this case. While I can confirm that University Hospital Kerry has an ultrasonography service and provides anatomy scans if clinically indicated, I cannot comment on individual cases.</span></div>
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<span style="font-family: inherit;">I am not aware of any meeting request from the family concerned to date but any such request can be referred to my private office. As Minister for Health, I am always open to meeting individuals and organisations who request it but, due to the busy nature of Oireachtas & Government business, it is not always possible. Should the family wish to request a meeting regarding the care of their baby, they may firstly wish to seek a meeting with the HSE.</span></div>
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<span style="font-family: inherit;">Minister for Health Simon Harris</span></div>
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<b><span style="font-family: inherit;">To the Minister </span></b></div>
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<span style="font-family: inherit;">Minister, I do wish to meet with you to discuss the current screening process for all expectant mothers nationwide. Through our campaign we are speaking on behalf of ourselves since the passing of our daughter and also speaking on behalf of all those parents who feel that such a diagnosis for their babies were missed. All vital organs should be screened to ensure that if anything is present, that proper procedures are put in place upon birth to increase the babies survival rate.</span></div>
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<span style="font-family: inherit;">Maternity hospitals in Dublin do currently offer this detailed screening and so this must be made mandatory nationwide. I trust that you now have a clearer understanding about our campaign and hope that you will agree to meet with us soon to discuss this further. </span></div>
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-37013848479660939602016-09-18T15:11:00.000-07:002016-09-18T15:14:52.309-07:00Campaign Update <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLDqVbFYBlzpMsfFlR0tSuXITyfdzmoy0QJlpQCWsw0YNibPHIdsR162iENqxgkey4vjN4K8f-o3HEaA1gLsZRW_efEp39910Z5yPNc8bPxlBiy_0RcBgfTQf-rX-yr6eJAFyxWtemir_q/s1600/13327590_10208762917497479_7745354889415785572_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLDqVbFYBlzpMsfFlR0tSuXITyfdzmoy0QJlpQCWsw0YNibPHIdsR162iENqxgkey4vjN4K8f-o3HEaA1gLsZRW_efEp39910Z5yPNc8bPxlBiy_0RcBgfTQf-rX-yr6eJAFyxWtemir_q/s200/13327590_10208762917497479_7745354889415785572_n.jpg" width="166" /></a></div>
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Last week since the initial launch of our campaign Cllr. Damian Quigg contacted me after he saw my interview on TV3 News, he explained that through his election to Kerry County Council he gained a position on the 'Southern Health Board' and is fortunate enough to be able to raise our campaign at a higher level. </div>
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It has since been confirmed today that following the email I sent to Cllr. Damian Quigg explaining our Isabella's story, the facts around (CHD) and why it is vital that all expectant mothers should have a standardized 'free detailed screening', that he will be raising our campaign on Thursday 22nd September at the 'Southern Regional Health Forum' meeting in Cork. This is absolutely outstanding progress for the campaign and we could not thank Cllr. Damian Quigg any more for the amazing support he is giving us. Cllr. Damian Quigg will forward the response from the Health Forum to me next week so I will keep you all posted.</div>
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As in my previous post regarding the meeting I had in the Dail with Louise O'Reilly TD which </div>
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Cllr. Damian Quigg arranged while we were in Dublin, he advised that as the Dail is currently in recess that Louise O'Reilly TD will immediately seek to arrange a meeting with the Minister for Health Simon Harris, during our meeting it became very clear that this issue has been a talking point and that the Minister would want to learn more, I have made it very clear that I will be part of every step of the process to ensure that our voice is heard and the procedures we request are put in place.</div>
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During my visit to Crumlin last week I was very lucky to see Dr. Orla Franklin, literally in the corridor which was pure fate, (a little help from above I like to think). Dr. Orla Franklin was Isabella's Cardiologist and as I explained to her about our campaign she agreed with every word that was said, while she was talking she had as much passion as we do, it made me think that if these scans were put in place and proper arrangements were made prior to the birth then Crumlin would greatly benefit also as they do feel the immense strain when these emergency cases such as ourselves come in without any warning, doctors and nurses scrambling around trying their best to find out what is going on, planning the procedures and even delaying confirmed surgeries to save a life, a life of a baby. I strongly believe that Dr. Orla Franklin would be a great spokesperson from a medical stand point, she understands exactly what we should have put in place, she has seen these cases all too many times and I know her voice will be heard alongside ours.</div>
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So, that's all the news so far, to summarize we are waiting for a meeting to be confirmed with Minster for Health Simon Harris which Louise O'Reilly TD will be actively seeking once the Dail commences again, following on from that Cllr. Damian Quigg will be attending the 'Southern Regional Health Forum' meeting in Cork next week and he will send the response from that to me next week, so keep an eye out for more updates. </div>
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Below I have copied the email I wrote to Cllr. Damian Quigg, highlighting our campaign to present at the 'Southern Regional Health Forum'. </div>
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Dear Cllr. Damien Quigg</div>
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I am writing to you following up from our previous meeting in relation to the launch of our campaign for, CHD Awareness (Congenital Heart Disease) and to promote ‘Free routine detailed screening’ to all expectant mothers nationwide.</div>
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It has been found that (CHD) can affect one in every 100 babies, which is an incredible statistic knowing how many babies have previously been affected, with a large number of them only being diagnosed days after birth, decreasing their survival rate by more then half. As this is not a hereditary disease this means no previous health problems within the parent’s family history can indicate if such a disease could be possible. (CHD) is caused by a simple miss communication during the early stages of pregnancy, and can be diagnosed during a detailed 20 week scan.</div>
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As the heart being the most vital organ in our body, any such diagnosis must be referred to Crumlin during the pregnancy in order for surgeons to gain a clear understanding of the issues present and to outline a surgical plan to ensure all necessary arrangements are put in place upon birth. The mother would then have her baby in Dublin’s maternity hospital within the ‘Coombe’ which is located near Crumlin where the baby would be transferred immediately, however this was not the case for our daughter.</div>
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Isabella Eileen Sheehan was born by emergency C-Section on Monday 23rd May 2016 at 12.01pm weighing 5 Pounds and 1 Ounce. Myself and Kevin went to see her early that same morning in the Emly Ward, doctors present explained that everything was ‘perfect’ and they were just waiting for her to suckle before we could bring her home on Friday, our son Keelan who is aged 7 then went to see his sister, it was during this time the doctor advised that they detected a ‘slight heart murmur’ and they were running a couple of testes to make sure everything was fine. Approx 10 hours after she was born a doctor and nurse asked to see myself and Kevin in a private room and explained that her heart condition seems to be much more serious and that she will need to be taken to Dublin as soon as possible. As parents to be told that everything was fine, to the complete opposite we were absolutely devastated, more so that we had to explain the situation to our son who also suffers from ‘ADHD’. Kevin followed the ambulance and arrived in Crumlin appox 10pm that evening to be by our daughters side and to sign any paper work if an operation was to take place.</div>
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I had to remain in Kerry because of my C-section however I was told recently that Crumlin had arranged a bed for me in Dublin on the Monday evening but there was a clear miss communication within Kerry hospital to arrange transportation for me. I was later discharged on the Wednesday once I was able to be mobile and relatives arranged a car for the journey on that same day, while I still did not know what was happening with our daughter. The next day on Thursday morning we were told that Isabella had ‘Hypoplastic Left Heart Syndrome’ along with many other complications, they advised that because her heart was too complex that they could not even offer her surgery to save her. Isabella was christened the very next day on Friday and passed away in our arms Saturday morning, to which we then traveled with her back down to Kerry for her burial the same day.</div>
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We understand in Isabella’s case there was no possible way they could save her, however in a different circumstance if there was any chance of survival she could have well lost her life in transit on her way to Dublin because her diagnosis was not picked up and no procedures were put in place. Furthermore our surgeon in Crumlin explained that with ‘Hypoplastic Left Heart Syndrome’, there is never a heart murmur present which made Isabella’s case very unusual, only due to her further complications with her heart that this murmur was present, this would lead us to believe that if she had the ‘Hypoplastic Left Heart syndrome’ and no other issues with her heart the condition would not have been picked up after birth, and that we would of brought her home where she would of passed away unexpectedly, obviously causing us emotional distress.</div>
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As you can appreciate, Crumlin are already under immense strain and even more so when emergencies like ourselves come in, in many cases as serious as our daughters it takes time to investigate the full extent of the diagnosis and the planning process for surgical options. As Isabella’s heart condition was not picked up during her scans in Kerry, the Crumlin team had to start from scratch and the decision was not made until day 3 of her life. As a mother I feel I lost time with my daughter because I did not have her in Dublin were I would have been if this was picked up.</div>
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In respect of the HSE if these scans are put in place they would save an incredible amount of money as parents would arrange for their own transportation to Dublin instead of using the emergency services as necessary, along with many other resources used during an emergency situation.</div>
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Since my campaign I have received hundreds of emails from families who have also experienced the very same journey as ourselves with their babies being rushed to Crumlin for emergency operations. I am representing all of these parents along with future families that could walk the same fate as ourselves if routine detailed screening of all vital organs during pregnancy is not made essential within our maternity wards. In recent weeks I have learned that all expectant mothers in Dublin do receive these routine detailed scans, so my question is, why are not all expectant mothers nationwide entitled to them also? All vital organs must be screened to ensure that if anything is present, proper procedures are put in place upon birth.</div>
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Our babies are our future Ireland, and they deserve the best care possible upon birth.</div>
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I trust that you have gained some insight into our campaign and what our ultimate goal is for all expectant mothers nationwide. </div>
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Please do not hesitate to contact me if you require further information or if you have any questions.</div>
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Thank you,</div>
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Kind regards</div>
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Jazmine Sands & Kevin Sheehan</div>
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A special thank you to Cllr. Damian Quigg for your support and we look forward to reading the response soon. </div>
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Mother to an Angel </div>
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Jazmine xoxo</div>
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-79316454198729824562016-09-17T07:08:00.001-07:002016-09-17T07:08:29.922-07:00Corks RedFM Radio Campaign Interview <br />
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Since the launch of our campaign to raise awareness for (CHD) and to also promote 'free detailed screening' to all expectant mothers nationwide, we have had some amazing opportunities through the media to share our Isabella's story and begin our campaign's journey. </div>
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We would like to express our appreciation to all the media who listened to the true meaning of our campaign and the goal we aim to achieve. </div>
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Click<b> <a href="http://mm.aiircdn.com/157/57d01b5ae1afa.mp3" target="_blank">Here</a></b> to listen to my full Cork's RedFM interview, @ the time of approx; <span style="font-family: Calibri, sans-serif; font-size: 11pt; line-height: 115%;">021:00</span></div>
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Please feel free to leave a comment or click on our 'contact us' page if you would like to email us. </div>
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Thank you all for your support with our campaign and I promise that we will not stop until we are heard and 'free detailed screening' is offered to all expectant mothers nationwide here in Ireland. </div>
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Mother to an Angel</div>
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Jazmine Sands</div>
Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-72285838244435336222016-09-16T03:36:00.002-07:002016-09-16T04:01:26.299-07:00Now I Lay Me Down To Sleep - Our photographer for Isabella <br />
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<b>NILMDTS</b></div>
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<b><i>Now I Lay Me Down to Sleep</i></b></div>
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Capturing Love, Not Loss</i></b></div>
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Once we were told on
that fateful day that there was nothing they can do to fix our Isabella’s heart
we did not know what to do next, in fact we were frantic as we knew time was
stolen, every minute we had her here we wanted to try and do everything we can
for our family and close friends to meet with her and capture every little
expression she gave us onto camera before she grew her angel wings.</div>
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As I have constantly said
throughout our campaign, the Crumlin staff has been and still are absolutely amazing
and truly gave us a little light at such a dark hour. They explained that they
can organize a christening for her and also a private photographer, I must
admit I was taken back a little of the thought of having someone come in and
take photos of our dying daughter or even if she had already passed away, as I
tried to think it through all that was going around in my head is that her big
brother needs pictures of her, we need pictures of her, this will be a once in
a lifetime opportunity, there would be no going back if we changed our minds
and if we did not like them then we don’t have to look at them, but my goodness
I am so pleased we went ahead and had them done. <br />
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Our photographer
Michelle came in and she was so respectful and instantly put us at ease, she
took photos of her little teddies, her hands and feet and then started to take
photos of our little princess with us by her side, Isabella was amazing and
gave us this extra time to get these photos done of her within her final hours.
There was a sense of calm while we were having our photos taken and it was as
if time was frozen, and now we can look back at these precious moments and have
a sense that she is with as always. </div>
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Her big brother
keelan said <i>‘I miss my sister Isabella
very much, she is still part of our family because we have these photos that
the lady took of her’. <o:p></o:p></i></div>
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<a href="https://www.nowilaymedowntosleep.org/" target="_blank"><b>NILMDTS</b></a> gave us a
chance to capture our daughter’s expressions and most beautiful eyes, we truly
feel blessed to have her pictures to look at, and we feel so grateful to know
that our son Keelan will have these to remember her by.</div>
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<b>Photos by NILMDTS</b></div>
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<span style="background: white; color: #1d2129; font-family: "helvetica" , sans-serif; line-height: 115%;">NILMDTS Mission is to</span><span style="color: #1d2129; font-family: "helvetica" , sans-serif; line-height: 115%;"><span style="background-attachment: initial; background-clip: initial; background-color: white; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;"> introduce Remembrance Photography to parents
suffering the Loss of a baby with the Gift of Professional Portraiture.</span></span></div>
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<span style="color: #1d2129; font-family: "helvetica" , sans-serif; line-height: 115%;"><span style="background-attachment: initial; background-clip: initial; background-color: white; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;"><br /></span></span></div>
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<span style="color: #1d2129; font-family: "helvetica" , sans-serif; line-height: 115%;"><span style="background-attachment: initial; background-clip: initial; background-color: white; background-image: initial; background-origin: initial; background-position: initial; background-repeat: initial; background-size: initial;">View their website here;<b> </b></span></span><span style="color: #1d2129; font-family: "helvetica" , sans-serif;"><span style="line-height: 18.4px;"><b><a href="https://www.nowilaymedowntosleep.org/">www.nowilaymedowntosleep.org</a></b></span></span></div>
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<span style="color: #1d2129; font-family: "helvetica" , sans-serif;"><span style="line-height: 18.4px;">NILMDTS facebook page click <b><a href="https://www.facebook.com/nilmdtsireland/" target="_blank">here</a></b></span></span></div>
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<span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;">If you would like to volunteer to become a NILMDTS photographer or if you would be interested in learning more about various volunteer roles nationwide here in Ireland or worldwide click<b> <a href="https://www.nowilaymedowntosleep.org/volunteer-membership-information/" target="_blank">here</a></b> to find out how to be part of this amazing organization. </span></div>
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<span style="color: #1d2129; font-family: "helvetica" , "arial" , sans-serif;"><span style="background-color: white; font-size: 14px; line-height: 19.32px;"><b><a href="https://www.nowilaymedowntosleep.org/volunteer-membership-information/" target="_blank">Request more information</a>. </b></span></span></div>
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<span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;"> Or if you know someone who needs the service of NILMDTS, please contact their central number </span></div>
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<span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;">083 377 4777 or nilmdtsireland@gmail.com</span></div>
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A special thank you to our photographer Michelle and all at <a href="https://www.nowilaymedowntosleep.org/" target="_blank"><b>NILMDTS</b></a>, you gave us a little light at such a dark time, you let us create memories and keep them for a lifetime and to that we thank you.</div>
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-35224735992119905732016-09-16T01:18:00.002-07:002016-09-18T10:11:58.211-07:00The beginning of our campaigns journey TV3 News interview<div class="MsoNormal">
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<b>Monday 5<sup>th</sup> September</b></div>
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I sat in our living room thinking about this blog I created
in memory of our Isabella and promoting awareness for CHD, and the promotion of
better screening for expectant mother, I created this blog back in early July
and never officially launched it. Around may head it went on, do I launch this
blog that spills my heart to the world during the most hardest time of my
entire life, would people think that I am dragging our story out and looking
for attention? No is the answer, I must do this I have to do this and give my
daughter a voice, along with all the parents that have gone through this also,
and not forgetting the future parents the ones who may follow down the same
journey as we did if I did not speak up. I stared at my laptop for ages, while
Kevin sat across from me not knowing what dilemma I was facing, until I looked
across at Isabella’s picture in our living room, my heart raced and an over
whelming sense of panic of the thought of any baby being brought into this
world and not having the optimum care possible because it was not detected, and
before I knew it I pressed the button to launch our journey into the world. </div>
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One of my Glow heart friends Gillian O’Donoghue messaged me
in a matter of minutes and asked if she can share my blog to her <a href="https://www.facebook.com/Glowhearts4crumlin/?fref=ts" target="_blank">‘<b>Glow Hearts for Crumlin</b>’</a> page, of course I replied I want everyone to see our journey and
help create awareness, amazing messages started to come and my passion and
determination grew, grew, I felt accepted, I felt emotional but most of all I
felt I had a sense of duty to our daughter and parents across Ireland. </div>
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I knew the next step would be to get my marketing head on
and draw up a plan for our campaign, an hour past after my post was shared, I
checked the visits to my blog from 40 views now at 3,000 views, I could not
believe it, then Gillian messaged me ‘In the last hour your post on our page
(Glow Hearts for Crumlin) and has reached 5,000 people and has been shared 18
times’ then over night it went up to 14,000 and 50 shares and still climbing.
This just proves how many other parents, relatives and friends this subject has
touched, there really is an incredible about of similar stories some who gained
angels and some still fighting all the way. </div>
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12.30pm that very same evening my phone rings and its a
private number, who could be calling me? Paul Byne from TV3 news, he is such a
gentleman, he explained that he read my blog and was so touched by our story
and wanted to meet with me tomorrow morning Tuesday 6<sup>th</sup> September
for an interview which would be aired on TV3 news that very same day, I jumped
at the chance as I knew this could be such a great chance to start our
campaign. </div>
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<b>Tuesday 6<sup>th</sup> September </b></div>
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The doorbell rings, 9am and Paul and his camera man Rory
both came in, he took the time to say how sorry he was for our loss and
listened to our story, hanging on every word I said, they set up in our kitchen
where I had some of Isabella’s photos and memory box on the table to show them,
I remember feeling nervous but I had a sense of calm aswell knowing that I am
doing this for every parent and parent to be here in Ireland. The interview
started and everything just poured out of my heart, trying my best to push the
message out there and for the health service to listen up, take note and make
some change. </div>
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Once the 12.30 news came on I was shaking, I was actually at
home alone just about to watch myself on TV, all of sudden Isabella’s images
came up, I had a lump in my throat, I placed my hand over my mouth trying to
take in what is happening. My daughter has done this, she is a miracle, once it
finished I remember bursting into tears as a sense of our daughter has really
gone, I know that may sound crazy but it really sunk in with me at that point,
but for some amazing turn around she is most certainly not forgotten. Throughout the day I could not even tell you
how many times my phone rang, radio, TV, press friends, family supporting our
campaign and to reach out to the HSE and try our best to put in place a
standardized routine screening to all expectant mothers nationwide in Ireland. </div>
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Watch my interview with Paul Bryne on TV3 News </div>
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<a href="http://www.tv3.ie/news_sub_page_mobile.php?video_id=113840&locID=1.2.883" target="_blank"><b>Click here to watch</b></a></h3>
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-68658948670068486492016-09-11T08:18:00.000-07:002016-09-11T10:00:33.074-07:00Our meeting within the Dail with TD Louise O'Reily<div class="separator" style="clear: both; text-align: center;">
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To all our amazing supporters, I just wanted to say thank you so much for all your kind messages we have recieved in the past few days. Our Isabella's journey has certainly caught much needed attention from all over the world regarding the current screening process of all expectant mothers nationwide here in Ireland.<br />
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I would like to announce that during this week we had a meeting with Louise O'reily TD who took her time to listen and express a mutual understanding with regards to the current issues raised and will be asking the Minister of Health Simon Harris to meet with us and to listen to our experiance and how we feel that every expecting mother should be given a detailed free screening during her pregancy, this will ensure that proper procedures can be put in place if any congenital defects were found.<br />
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We know we have a long journey ahead of us but our aim is to ensure that there is a high level of standardised maternity care across Ireland.<br />
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We will keep you updated and thank you again and also thank you to Cllr Damian Quigg for setting up this meeting and taking your time to meet with me.<br />
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Mother to an angel<br />
Jazmine<br />
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<br />Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-27145360376389883002016-09-09T15:18:00.000-07:002016-09-12T04:54:16.000-07:00Join 'Isabella's CHD Awareness & Pregnancy Screening Campaign' Group <br />
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<span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;">Ok, so here we go, after an amazing but very busy week we have now finally launched our campaign page, so please share as much as possible, this is a public group and all is welcome to share your own personal stories to help drive our campaign, together lets help create awareness and promote better 'free' detailed screening for all expectant mothers nationwide.</span></div>
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<span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;">Click <a href="https://www.facebook.com/groups/1664217203893885/1664232110559061/?notif_t=like&notif_id=1473679531504015" target="_blank"><b>here</b></a> to join our campaign group.</span></div>
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Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-43775080792914626402016-09-09T12:32:00.001-07:002016-09-09T12:34:42.199-07:00A Poem For Our Isabella <div class="separator" style="clear: both; text-align: center;">
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<br />Mother to an Angelhttp://www.blogger.com/profile/15228262129933077883noreply@blogger.com0tag:blogger.com,1999:blog-5529444519865502107.post-51003913065436781192016-09-04T15:28:00.002-07:002016-09-04T15:43:21.991-07:00Help Support Crumlin <br />
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<b><span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;">Supporting </span><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/crumlin?source=feed_text&story_id=10209543446050205" style="background-color: white; color: #365899; cursor: pointer; font-family: helvetica, arial, sans-serif; font-size: 14px; line-height: 19.32px; text-decoration: none;"><span class="_5afx" style="direction: ltr; font-family: inherit;"><span aria-label="hashtag" class="_58cl _5afz" style="color: #4267b2; font-family: inherit; unicode-bidi: isolate;">#</span><span class="_58cm" style="font-family: inherit;">crumlin</span></span></a></b></h2>
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<span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;"><b><br /></b></span><span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;"><b><br /></b></span><span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;"><b>Please help support #Crumlin because 'Every sick child deserves every chance'</b></span></h2>
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<span style="background-color: white; color: #1d2129; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;">I am selling raffle tickets to help raise money to rebuild Crumin's Nazareth ward where the tiniest and sickest babies are treated. This ward has helped care for babies like Zoe who was born at just 24 weeks old, amazingly she is now 19 months old and has defied the odds. The Nazareth ward is one of the oldest wards in Crumlin and is in serious need of an upgrade, and with our support we can be part of this journey to help Crumlin give the ultimate care t</span><span class="text_exposed_show" style="background-color: white; color: #1d2129; display: inline; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;">o the most sickest of babies. From first hand experience we know the care and attention all the Crumlin staff give, and have been blown away from the support we continue to receive even after our Isabella grew her wings. I have just 32 tickets to sell each at just €3 or 2 for €5 all tickets are placed into a draw to win a brand new Ford Focus. <a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/mothertoanangel?source=feed_text&story_id=10209543446050205" style="color: #365899; cursor: pointer; font-family: inherit; text-decoration: none;"><span class="_5afx" style="direction: ltr; font-family: inherit;"><span aria-label="hashtag" class="_58cl _5afz" style="color: #4267b2; font-family: inherit; unicode-bidi: isolate;">#</span><span class="_58cm" style="font-family: inherit;">mothertoanangel</span></span></a> #crumlin <a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/childrenshospital?source=feed_text&story_id=10209543446050205" style="color: #365899; cursor: pointer; font-family: inherit; text-decoration: none;"><span class="_5afx" style="direction: ltr; font-family: inherit;"><span aria-label="hashtag" class="_58cl _5afz" style="color: #4267b2; font-family: inherit; unicode-bidi: isolate;">#</span><span class="_58cm" style="font-family: inherit;">childrenshospital</span></span></a> <span class="_5afx" style="color: #365899; cursor: pointer; direction: ltr; font-family: inherit; text-decoration: none;"><a class="_58cn" data-ft="{"tn":"*N","type":104}" href="https://www.facebook.com/hashtag/raffle?source=feed_text&story_id=10209543446050205" style="color: #365899; cursor: pointer; font-family: inherit; text-decoration: none;"><span aria-label="hashtag" class="_58cl _5afz" style="color: #4267b2; cursor: pointer; font-family: inherit; text-decoration: none;">#</span><span class="_58cm" style="color: #365899; cursor: pointer; font-family: inherit; text-decoration: none;">raffle</span></a></span></span></div>
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<span class="text_exposed_show" style="background-color: white; color: #1d2129; display: inline; font-family: "helvetica" , "arial" , sans-serif; font-size: 14px; line-height: 19.32px;">Please feel free to contact me if you would like to purchase a raffle ticket to help Crumlin raise money for their Nazareth ward, I've already sold half the ticket's so make sure to get yours ASAP.<br />Email me on; jazminesands@gmail.com</span></div>
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